About Laura

Introduction

Laura is a former primary school teacher, blogger, poet and jeweller living in Sussex UK. She is a positive thinking, mum of 2 teenage boys and is happily married to Joel. Laura is an IIHer, chronic migraineur, patient advocate and mental health campaigner.

After developing a debilitating brain condition, IIH, in 2014; she sadly had to give up her 14½ year teaching career. Soon after being diagnosed, she turned her life long love of writing into this blog to document her journey with chronic illnesses. This evolved into raising awareness of disabilities, chronic illnesses and mental health.

Laura runs the Mission Migraine Twitter account, which raises awareness that migraine is much more than just a headache. Laura started her own business Paprika Jewellery & Accessories after starting to make jewellery as a distraction from the pain.

She writes poetry to explore her own mental health and well-being. Laura writes about positive thinking and living her best life, despite her conditions. She hopes to inspire others to find their own sense of purpose, whatever challenges they face. Continue reading About Laura

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How Brain Disease Promised Me Quality Life Opportunities

How Brain Disease Promised Me Quality Life Opportunities text on a dark blue background. An image of blank wooden tiles with 4 spelling the world LIFE.
How Brain Disease Promised Me Quality Life Opportunities

I’ve been thinking alot about life recently. It’s been 5 years since I was diagnosed with a an atypical presentation of a rare brain disease; Idiopathic Intracranial Hypertension or IIH. It’s also been 3 years since I was medically dismissed from my teaching career and I never dreamt back then that I’d still be mostly bedbound and so sick after 6 major surgeries.

But, how could I have known 5 years ago that this disease would have such unforgiving consequences for impact myself, let alone Joel and the boys? We never considered that this disease would mean reconsidering our dreams, hopes and plans for life together.

On the flipside, I’ve found silver linings amongst this shizz! I’ve found new ways to connect with the world, my family and my own wellbeing and built an even better relationship with Joel and the boys – who’d have thought that could happen! I’d never have been able to see myself not teaching but I’ve realised that I do have other talents and other roles to fill.

So in spite of my illness turning our world upside down and inside out, I’ve realised that my brain disease has oddly promised me new opportunities. I know that sounds crazy, even for a self confessed optimist, so let me explain my how I got to this conclusion.

How do you live your life?

  • Are you a dreamer –  living in a fantasy world with unrealistic ideals?
  • Are you a planner – always being organised and making lists?
  • Are you a doer – filling every waking moment and being very efficient?
  • Are you an optimist – being confident that there’s always a silver lining?
  • Are you a realist – able to accept and deal with the situation you’re in?
  • Are you an idealist – sure that happiness is a state of mind; despite the practicalities?
  • Are you impulsive – acting rashly and taking risks without thinking it through?
  • Are you a believer – having faith in what you do or trusting that your thing is truth?

I’ve always been an optimistic planner with an organised life. Everything had a place and everyone knew the systems. I knew was meant to teach aged 5. I taught my brother in the school holidays, when he’d much rather have played cars. I planned my life as a teacher and when I got there, I continued to live, walk and dream in teacher mode for 15 years.

Joel and I met at college and we took our time getting to know each other. I found his spontaneous nature intriguing as it was the total opposite to my pragmatism. But we had a shared sense of humour and moral standing and eventually became more than friends.

Girl with medium length, blond hair making a disgusted expression

I’d describe Joel as a realistic dreamer. He adapts to every situation and gets a job done but then he’ll fantasise over idealistic homes and awesome guitars. He dreams of not having to work ever again, so he can paint and play music all day and maybe study for fun!

One of the games he plays with the boys is ‘lottery dreams’ which is pretty self explanatory. They’ve eyed up many mansions, fast cars and had myriad wild dreams. I love that Joel has always encouraged them to delve into their imaginations as playing this game’s just not my bag. Well, it wasn’t!

But then I got brain disease and my thought process changed and as time went on I knew I had to reevaluate my life plan. I had to learn to be more impulsive and grab the opportunities to live on my rare better days. I had to learn to stop doing and even how to rest; in fact I’m still learning that. But I had to get real and accept this was my life.

Questioning My Purpose

 A photograph of blue sky and mountains in the background. In the foreground is a grassy hill with a signpost saying 'why' and a ?
Why Am I Here?

Accepting this life has been a huge deal! When I became ill I thought I’d be back in the classroom after a change of migraine meds. But that didn’t happen, I was left undiagnosed for months. When I was diagnosed, I was told treatment would be a long process but I thought I’d be back teaching after a few brain surgeries. Just like that, yep really!

I was angry about this disease for ages and had a side order of guilt and despair. Quality opportunities for me were as elusive as the hope of being pain free. I wasn’t clear what my role was anymore and all that I knew was fading; I had no idea where the end point was!

It took time to sink in that ‘long’ in this case meant marathon long; life changing long. It made me question my role and my sense of purpose was destroyed. It didn’t look anything like the life I’d planned and I had no backup option. I was a mum, wife and teacher. Brain disease had pulled the rug out from under me and messed up our lives.

Living In The Shadows

A single tall and spiky green Cactus Stem
The Grieving Process Cactus

I got lost in a desert of all consuming pain and hadn’t noticed the grieving process cactus spike I’d trodden on. I ways keeling over, dehydrated, unaware that I just had to wait for the cactus to bear fruit for the sweet syrupy nectar of a quality life. I coulhdn’t even feel that cactus back then. I could only see what I thought was the fix; surgery. Read my story here.

I was living in the shadows, in danger of letting this rare condition make a total eclipse of my life. The Black Dog was snarling and snapping at my heels every day so I needed to tighten the leash. I realised that I was being sucked into a vast black hole and I couldn’t hold on much longer. I felt like I’d been left to rot but knew I couldn’t let go of the edge.

I realised I had to weigh up the quality of life I had with one of taking risks and grasping all the opportunities I could. I wouldn’t let myself succumb to the darkness so my GP sorted urgent support from a counsellor. I felt like someone had my hands and wouldn’t let go!

The counsellor pointed out the cactus spike that was stuck in my shoe the whole time! I got hold of it and let myself start the grieving process for life pre brain disease. I let my inner mid-tantrum toddler out. I needed to be heard to began to accept the situation I was in.

The grief and anger I felt meant I was starting out on an equally long journey to heal my mental pain. Joel and the boys mattered too much for me to let go so I worked out the etchings of a plan with my first counsellor and slowly I began to rise.

A Determined Woman Will Always Rise

"And Still Like Dust I Rise" Maya Angelou quote on a sunset background with a silhouette of a tree and an African elephant with a man riding it, lifting its trunk.

As I began to resurface I knew I needed more to think about than watching TV and eating. I realised I had more resources than I thought and started to use those I knew I already had. Being Mummy, Wife, Teacher and Cook was enough to still feel needed. It was a start.

When my counselling sessions finished I was in a better place mentally but physically my health worsened. I joined online support groups and found myself helping others in similar situations. I made some genuine friends but I was putting too much energy into helping those who didn’t give anything back.

I guess my nature is to nurture and I enjoyed shining some light into their day. It was a distraction from my pain too but I caught myself checking my phone every 5 minutes as it was my only connection to the outside world. This wasn’t healthy and I lost sight of shining the light on myself. I needed something more than this but I was still lost.

Then one day I was reminded that I’d been going to silversmithing workshops for years before I was diagnosed. I’d loved every minute in that workshop and my toolbox was just sitting there waiting patiently. It was time for me to rise up for myself again.

Reconnecting With The World

They say creativity can transform lives. It’s known that well-being and self worth can be improved through music, craft and art. Creative therapy involves expression beyond words. However, I’d never considered myself to be creative until I picked up those pliers and the sheet of silver. I thought that this might be the perfect soul healer for me.

I taught myself to make beaded jewellery as I couldn’t safely work with the silversmith’s tools. It was a wonderful distraction from the pain and boredom. My friends wanted to support me and I started getting orders. Soon after, I realised this thing might have potential and opened my Etsy Shop ‘The Paprika Jewellery‘.

Paprika Jewellery & Accessories Logo with 3 handrawn red chilli peppers.
Paprika Jewellery & Accessories

Joel’s recently told me that although he was inspired by my focus he’d been concerned by inability to dream. He thought I’d struggle when the day came to retire. Ok, so I didn’t retire but I’m so glad he’d bought those silversmith workshops for me that birthday.

My first sale to someone I didn’t know was such a high. Really I had no idea how to run a business, but it was an epic distraction. I took it at my own pace and any sale was a bonus back then. I didn’t realise it at the time but I’d found a sense of purpose again.

As my self esteem improved I decided to start a blog to help me process everything that Brain Disease threw at us. I was embracing the grieving process now. My blog focussed on raising awareness of my story, IIH, and challenge the misconceptions of migraine.

People loved to hear about my journey and my blog engaged others affected by IIH. I was sporadic with my writing as it was such hard work for my brain. It still is but don’t tell anyone! Yet again I was helping others but I’d found my own sense of purpose this time.

I took a total break from everything in 2018, as I had 3 surgeries. I really needed that rest and I focused entirely on being with my family. By now I’d recognised the importance of my role as a wife and mother so I took this seriously. I realised how lucky I was to be at home every day so that when the kids and Joel came home, I could just listen to them.

If I was teaching I wouldn’t have had this opportunity so I embraced it. I’ve become the family facilitator. I’ve been able to support the kids learning and build a stronger family bond than I could have done in my old life. Now I celebrate the little things too.

Taking The Opportunities

Since recovering from my surgeries I’ve been building up my energy whilst learning to pace myself. But there’s so much I want to do right now so I’m practising matching the energy I have with the energy I need. I’m ready to grab every opportunity and achieve all I can.

I still spend most days in my bedroom as going downstairs is enough for a wipe out. I can use the opportunity to write, make jewellery and rest so I can make the most of the better days, doing what matters most; being with my family (maybe even going out) and seeing friends . I still crash afterwards but it’s worth it to be with those who matter most!

I’m focusing on my new jewellery collection and the relaunch of my shop at the moment. I’ve putting into practice the things I’ve learnt about business when I was resting. I’m excited to develop my vision of writing and creating jewellery from positive themes.

Yellow banner with a sunset image with silhouettes of trees in Sussex countryside. With Paprika Jewellery & Accessories written in the sky. Next to the image it says ‘Luxury Jewellery & Accessories from and for the souls, positivity for you now and hope for a vibrant future.
Making Jewellery and Accessories to share love, hope and positivity

The potential my writing has to empower women was a key factor in my decision to create gifts or treats which bring hope for the future. It’s a bigger task than I’d expected as I’m also giving my whole shop a makeover. I pushed myself at first but realised it was too much. So I’m practising balancing work and wellbeing to achieve my goals without overwhelm.

Whilst starting this new chapter, I was approached to write for Teva Pharmaceutical’s ‘Life Effects’ Patient support. It feels amazing to be sought out to blog alongside some amazing advocates, let alone getting paid for it (boom)! I’ll be writing a blog every 2 months for them but they my health comes first, it’s slap bang in the contract so I’ll pace myself!

My bio photograph for the Teva Pharmaceutical Life Effects Patient Support site in a instant photo style frame. I’m wearing red sunglasses with wavy hair pinned back, against a back drop of evergreen shrubbery.
My Life Effects Bio photo

When I wrote my Bio for the site I had a bit of an a-ha moment as I was reading it aloud to Joel. He stopped me and pulled me up where I’d written that I was an ‘aspiring’ writer. I want to write a book and see this opportunity to work towards that, but Joel made me recognise that I’m already a writer. Apparently a talented one at that according to Joel.

We discussed why I’d written that and I ended up unpacking a lot of the self doubt I’d been feeling since being offered the role. However I’ve now pitched my first blog idea, which went down with a 100% yes straight away 🙌. This will be my next blog and I’m so happy to be using my story to help others. Keep an eye out as I’m sure I’ll keep it on the down low.

As I’m always working towards something now, I have to plan my time carefully to prevent overdoing it. Flare ups happen and still hit from nowhere sometimes so I have to be flexible about what I do each day. As I work on both blogging and getting a business going again, I have to check in with myself so I don’t burn out from self inflicted expectations.

I’m so excited to see how my hard work for my shop pans out and to see where this writing journey takes me. Believe it or not, I’m actually daring to dream a little about both of these things. There it is, I got to the whole me dreaming bit at last! ✨

The Promise of Quality of Life

How Brain Disease Promised Me Quality Life Opportunities wording on a cream background. A lady with dark brown hair is asleep on a cream soft blanket with a cream puppy in her arms.
How Brain Disease Promised Me Quality Life Opportunities

A long and winding path has brought me here; to a place where I feel incredibly lucky to be surrounded with live and support. A place where I am still achieving things even when I’m mostly bedbound, a place I never dreamed I would be.

The pre Brain Disease Laura would be proud of me now. I’m still focussed but I now dare to believe that there’s more out there for me. My surgeries have lifted the brain fog enough for me to kick daytime TVs backside and do something that matters. My optimistic view on life has helped me but finding so many silver linings along this journey has been my soul food!

Questioning my role has been liberating. If I was teaching I wouldn’t have discovered other talents and explored what I have to offer. I definitely wouldn’t have had the guts to pitch my heart to the world. I wouldn’t have discovered my naturally empathetic nature and I certainly wouldn’t have felt a need to offer positivity and light with those who need it.

A cobbled path through building at night. Lit with small fairy lights above and leading to well lit buildings at the end of the path.
The lights leading the way out of the shadows

In the lights that scatter the Brain Disease trail we’ve found morsels of glue which have reinforced my bond with the boys. Ok so maybe mixing teenagers and glue isn’t the best use of a metaphor but the relationship I have with them now is more important than I ever thought it would be. Their company is the biggest reward for getting through the pain!

I know Joel is proud of me for the effort I’ve put into my own wellbeing; which is a work in progress. His belief in my writing ability is empowering and I couldn’t run my business without his bucketfuls of support. He helps me dream and believe that I can. His trail of breadcrumbs led to my hope and determination so I could make it out of the shadows.

My perspective on life has changed completely due to IIH and has opened my eyes to the amazing opportunities out there for me. Although the positives can’t undo the abrasive nature of my pain or how it wears away on all four of us; it has shown that we can still live a quality life. So, directly because of brain disease I now rise, even stronger than before.

What has changed the way you look at the world?

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Wooden desk with a notebook open and a blue pen resting in the spine. Wording says Free Journal Prompts for a better you. Original Poetry, quotes & questions for positive thinking.
Chronic Illness Bloggers

✋ Hey there! You could really help me out. Just one minute of your time to press that share button helps me so much! You’ll literally make me do a bed-bound happy dance. Now there’s an image for you! Go on, you know you want to! 

Green background with two patterned semicircles on either side of banner. Text say 'All Confessions Are Oddessys' by Raymond Queneau

Confessions of a Bed-bound Mum Surviving Without Energy

Woman in grey vest and pink trouser sitting in a white bed with a laptop open. Bottom third in green saying Confessions of a bed-bound Mum
Confessions of a Bed-bound Mum Surviving Without Energy

What I need to confess

I often get asked how I cope with constant pain and Joel is asked daily how on earth I keep so positive. I even ask myself how I do this whole Mum act whilst being stuck in bed 85% of the time. So I’ve decided it might be time to confess that…

  1. I’ve been rejected and accepted for living in bed
  2. I’m not always positive and productive because I’m always in bed
  3. Stuck in bed with no energy, I honestly don’t cope
  4. It’s humorous how some of my ‘stuck in bed’ care is curious
  5. I realise my support network helps me survive being stuck in bed

Woman with black curly hair laying in a fetal position. She looks sad or hurt and has pulled the cream sheet up under her
Photo by Paula Lavrador

Just in case you thought I’d gone all Negative Nelly on you here, I haven’t, This post is about surviving!

But there is contemplaining in this post. I’m owning the hidden side of the warrior: the thin skinned; dirt dishing; ranting foot-stomping anti-hero. I’m owning up to my inner 5 year old, throwing her toys out the pram!

I hide my negative side, but if I’m being open about living with chronic illnesses, then I have to admit I’m not always positive and that, my friends, is okay. I need to learn to say to myself that it’s okay not to be okay, too!

Being rejected and accepted 

If you knew me before I became the brain diseased Laura, then please know that I probably don’t mean you as I have a cathartic moment here (unless it is you). Then you have a choice to make – contact me or fly away for good! Harsh I know, but…

When I first fell ill and could drive, make my own lunch and put my kids to bed; most people stuck around. But when I was so ill I couldn’t get out of bed, things changed. Some have shown where their priorities are, so if you’re waiting for me to contact you, then bad news – I won’t be. I’m too stuck in bed, in pain to do that! 

I don’t miss anyone that chose to leave my life, as such, but their selfish actions still play on my mind. What hurts most are the life event friends (marriage, babies etc.), those I thought of as close friends who no longer want to be there for me. It sucks to admit that, but I have to use my energy on my friends that get it.

I love the friends that stuck around when this disease started eating away at the Laura I was (I’m mostly all there now); the friends who’ve never doubted me. I can’t tell you how much I appreciate them accepting me as I am. Thank you to those of you who don’t bat an eyelid when I cancel plans; for sitting on my bed with your legs up, getting your own drink, listening when I ramble on and telling me off for doing anything, like that’s normal. You keep me going on the dark days.

For my full story read this: Learning To Live One Day At A Time – My story so far

*Disclaimer – this will not be as good as The People v OJ Simpson  – True Crime Story

I’m not always positive and productive

Bert smiling in his pinstriped suit, hat and white gloves, adjusting his blue bow tie. He's smiling at Mary Poppins who is dressed in pink with a pink hat and also smiling.

I wake each day hoping to do so much, but I just don’t have boundless energy. I do feel like I’m betraying you by even hinting at negativity when I push for positive energy so much. But, let’s be honest, no one can be positive every second of the day; unless they’re ‘Cor Blimey’ Bert or Mary Poppins.

However, life as a bed-bound mum is pretty shocking really. I try not to think about it in the grand scheme of things, so I fill my day with distractions. But despite knowing when enough is enough, I struggle to act on what my body is telling me. I’m in constant pain, whether in bed or seeing friends; so despite being so ill I’ll push on.

Genuinely I often feel uncertain, not knowing how I’m going to feel each day. Sometimes I can’t even guesstimate my pain level on waking, as it can change in minutes. I plan my day ahead but I’ve learnt to adapt plans. However, this is when I can be unproductive and it can result in one of these things happening:

  • I force myself through the day, thinking it will pass
  • I keep busy but end up not finishing anything in my planner
  • I forget about the one thing that does need doing
  • I don’t meditate or give my mind some space
  • I don’t move much – no bed yoga or even my physiotherapy exercises
  • I rest all day and let go or I just get really bored
  • My body decides to sleep all day, so I get nothing done

Red misted forest background with a quote by Albert Camus saying 'A Guilty Conscience Needs To Confess. A Work Of Art Is A Confession'.
Guilt for no reason is hiding anger at oneself

I find it frustrating and have so much time to think, stuck in bed day after day. I do have a Guilt Goblin that chips away at my self belief. The trail of red mist lingers with a sour taste of culpability. My self anger can last for days, but Joel’s my knight in shining armour who kicks that spurious fiend back to the Goblin Gaol and curbs the self sabotage.

I feel a little dishonest about only just opening up about how dark some of my days are. I’ve not tried to hide it, but my naturally positive outlook means I bury the negativity. I know the only person putting pressure on me is me, so now I need to find balance by permitting myself to let that anger out to break the goblin’s curse.

With no energy, I honestly don’t cope 

I admit that I feel drained and rough around the edges but I have some control so I can cope. I’m scared that If I allow myself to feel negative, there would be a BOGOF deal on. I’d end up with a double negative and they don’t do nobody no good!🙈

The problems which arise for those of us with chronic illness come with fat globs of failure and guilt. It can be overwhelming even though these feelings aren’t validated. I can use up more energy fighting the dark days; instead of saving it for better ones.

So I’ve realised that if I let myself rant, I can save my mind from splintering. My safety net is in the power of words and if I put my energy into going full James Joyce mode, letting my thoughts flow on to the page, I may make some brain space. I admit  it’s exhausting to let buried guilt free but I have to, before it poisons my future self.

To be able to cope with it all alone is too much and it isn’t fair to transfer all the pressure on to Joel. So even though it’s hard to do, accepting help has allowed us all to use our energy wisely. I can focus on being a mum and we can focus on family life.

A woman sitting criss legged on a bed in a dark room. It has one window with a blind down.
Confessions of a Bed-bound Mum Surviving Without Energy

Some of my care is pretty curious

Joel and the boys are still my main carers, even though they’re unpaid – shh! They still manage to make me laugh every day, often about my own care needs! Doing that constantly is too much to ask, so I have two Carers that help me on weekdays.

Helen and Sam are both very different characters on top of knowing my needs, we  have a good giggle most days too. They do pretty standard physical care, such as making sure I wash and eat. But they also have to cheer up a lonely, bed bound 41 year old who lives in the dark, the literal dark and sometimes the dark filled mind! 

Helen’s a gentle soul and brings an air of calm with her. She seems to have the ability to make me say and do sillines and I think I make her laugh most days! Sam’s a more recent addition to the team. She gets everything done, despite her clumsy limbs and we giggle our way through most days. She’s also owns being weird and I love that!

I’ve let you in on some of the darker sides of being a bed bound mum, so now I’m up for sharing what goes on beyond the scenes, why all of my Carers need to be on it with me and maybe have a little bit of crazy about them too… in a good way! 😜

  • They have to make sure I’m safe, especially using the walker around my room as I get over confident thinking I can do it, but I don’t always see the collapse coming or Sam falling over it herself, when she brings the extra kooky. There’s a need for me to have constant reminders not to bend over to pick up everything I drop. If I had £1 for everything I dropped each day… I’d have to um… give it to everyone that picks it up for me I guess. Then there’s my lifeline, the bane of my life. It makes me feel soooooo old, but I have had to use it once, when I fell in the shower. My boys and a carer, who’s moved on now, were here but there was a  problem as none of them responded! They all thought the noise was something other than my lifeline – a phone message or a dial tone!!
  • Doing the laundry is always a big job of washing, drying, folding etc, but I’m quite particular and my funny ways get muddled up when 3 or 4 people are doing the same job. I want some clothes rolled; my towels must never go out on the washing line; I have a specific drawer system and I like my clothes hung in a certain order. And that’s me not even me being picky! The funniest thing is that Sam often puts my clothes away inside out. I don’t really mind but one day I mentioned it to Helen. When she left, I saw that she’d put the sheet on my bed inside out and thought I wouldn’t notice – as if! As Joel puts it, he doesn’t give a shizz (sort of), but he knows how much it bothers me as a weirdo! 
  • Any carers that work for me have to know how to make me a smoothie – it’s the law! They have to understand the love for coconut anything and avocados in everything. They have to know how to use maca, baobab and cacao powder and the joys of mornings and spirulina (they stain everything green!) They have to have the patience to clean my bamboo straws and make the occasional smoothie bowl. Then they have to remember every ingredient they’ve used so I can put it into my weight loss app. I’m not fussy or anything, I just don’t have an appetite and lots of deficiencies. They have to remind me to eat 3 or 4 times! 
  • I’m used to a room full of chatter and do like a natter. I don’t mind alone time, but I just need a little bit of life to break the boredom of living in one room all the time. However, they only have a short amount of time here so they have to get used to having to tell me to shut up 3 or 4 times and have often been found backing out the door while I keep talking.  Then they have to make it out as fast as they can before I start calling down the stairs at them! They also have to try and follow my crazy brain and plot twists before reminding me what my point was or whether to just go with it! 
  • Then there’s the wheelchair – the fun of fitting it in a small car and putting it together without trapping the seat belt in the wheel (so many times 🙈). If we get to that point, it’s not as simple as it seems, then we have to make sure that we’ve parked where I can actually use it or not. Sam’s been a carer all her life but my boys do a better job driving!! 😂 Firstly she parked right next to scaffolding which made the path too narrow. Then she nearly toppled me out down the curb with no attempt to reverse. I shrieked in time and she managed to bump me over the metal ramps instead. When we arrived at the tearoom, she parked up and we ended up playing musical wheelchairs as we found out it was booked up. When we tried to get away we were already in hysterics as a couple had watched the full show from their outside table. He ended up rushing to help when my wheels got lost in traction over the cobbles and went into wheelspin. We ended up going back and driving to an alternative!
  • Then there’s the alternative remedies, Mindfulness and meditation. They bring me a herbal tea when they get here, but not if I’m meditating – then they have to leave me be for a bit longer. They have to understand bed yoga in case they walk in and I’m doing some strange movement. They have to get used to my essential oil diffuser and the coconut oil that goes on my body hair and  in smoothies. And then, only then, do they get to embrace the world of the miraculous Migracap as demonstrated below- an ice hat to help with the pain.

Laura sat in the car, wearing a brown coat. A black Migracap (hat with ice packs at all pressure points) on her head with a very pale face.
Me in pain in a Migracap.

I’m sure there’s more, but the main thing is that I’m surviving and they support they give me enable me to be a good mum. 

Read more about what I get to up to in my days here:

A day in the life 

I realise my support network helps me survive

Mix the combination of Joel and my boys with Sam and Helen and I have the perfect mix. I haven’t always had it easy with finding the right carers, but Sue who owns the caree agency is a very good friend and we’re all happy, she even comes in sometimes. I’m so lucky to be able to call my carers friends.

I can confide in both Helen and Sam and that is a crucial part of my care, especially on the darker and more painful days. Also, I’m still youngish so I need to be able to be friends with the people rummaging through my knicker drawer!

The vital role my friends and family play in my support network is crucial. I’ve spoken a lot about my friends in the past and how important their role is. Nothing has changed. Those friends that made the choice to stick by me are the people who keep my spirits lifted. 

I can’t talk about my support network without mentioning my Dad. He’d stay over when Joel was away from work, until recently. The boys have now taken on this responsibility. He still takes Youngest to swimming lessons and will be there for music lessons, engineering club and anything else pick ups, at the drop of the hat.

With all this support, I know someone will be there for me, whatever, whenever and wherever I need. The role each person that stands with and by me my through my journey is what helps me to do more than survive with this rare disease. I thrive!

The most important thing anyone in my jigsaw of support can do is to make sure I preserve energy for mum duties. They will all tell me off for talking too much and if my pottymouth alter ego is allowed out to play, well… I think I may have a sense of humour. I think that answers the how I cope question. You have to find the funny! 

Lastly…

It feels good to admit that I’m not always positive. I imagine you’d guessed, but if I didn’t feel safe from the support I get, then I wouldn’t be able to admit it and own it – well nearly. Getting better at understanding my lack of energy is an on-going study, but I’m learning that if I stop comparing myself it helps. This all helps me cope.

The support I have is undeniably what helps me be a great mum.. bed-bound or not. Those Friends, family members and Carers that form my support network are like the special shells that whisper in my ear at the end of every day that I did it. That I survived even without boundless energy and that my kids did even more than that!

What helps you cope with chronic pain or illness?

Chronic Illness Bloggers Continue reading Confessions of a Bed-bound Mum Surviving Without Energy

5 Last Chance Opportunities To Show Unconditional Love

5 Last Chance Opportunities To Show Unconditional Love5 Last Chance Opportunities To Show Unconditional Love

I’ve been thinking about all the things I wish I’d said or done and didn’t get the chance. I imagine most of us have have experienced this. So I’m going to talk about last chance central, unconditional love and how you can still have a loving relationship with chronic illnesses. I’ll be sharing 5 opportunities I believe we should take to show limitless love.

**WARNING This blog contains possible triggers surrounding death and loss of loved ones. So although this blog is mostly about love if you feel uncomfortable whilst reading this, please stop and if necessary, speak to a professional.

This blog is based on my own experiences. I am not a doctor and all thoughts are my own, other than attributed quotes. If you need medical advice speak to a professional.

Bucket Lists

Before we start talking last chances and unconditional love, I need to get my thoughts on  Bucket lists off of my chest and I need to ask you this:

If You Had Only 24 hours left to live, What Would You Do?

I’m asking, because there’s myriad possible answers so choosing one becomes, well, tricky! I guess Space would be a mission 😜. I guess this is how bucket lists became a thing, but I’m not one for that kind of idiot box cheese.

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Photo by hitesh choudhary on Pexels.com

I mean, why write a list of things you want to do before you __⌛, when you could just get up off your arse and do them?  In my opinion, the idea’s been hijacked by social media disease and become another thing you have to have!

Don’t sit around thinking and planning, get on and do the things you dream of because one day you may no longer have a choice. If you have the chance to do what you dream of every day, then go for it. But chuck that icky bucket!

** Of course when someone is diagnosed with a terminal or degenerative illness, they should grab that bucket and do everything they can. 

Chronic Illnesses and Last Chance Decisions

Having a chronic illness can change your viewpoint and may need you to adapt your lifestyle, meaning you may miss opportunities. I think this has the potential to create a shift in your decision making.

You might:

  • Grieve for what could have been or
  • Choose to take a different path and make the best out of the situation
  • Feel held back from taking chances
  • Be left in a position you’d never imagined could be you.
  • Change what you thought of as or
  • Feel that unconditional love has reached its limits
  • Become dependent for support with money, travel or childcare
  • have your partner or child become your carer
  • Feel too sick and weak and remain where you are
  • Might take opportunities, even when you feel worse after doing

When you’ve been given medical clearance, be kind to yourself,  showing unconditional love to yourself before you give it to your loved ones. Please don’t let those countless opportunities pass you by just because you have an illness.

My Own Last Chances

These are the stories of last chances I wish that I’d taken had I known it. **This may be distressing reading.

As a Mummy I’ve felt the loss of my baby born unresponsive and whisked away from me. On the ward, the cot by my bed lay empty. Joel and I were told he was having a 4 hour fit. Not knowing if he’d make it or have brain damage, I feared I wouldn’t get the chance to hold my boy alive. We’re very lucky as he pulled through at the last minute. He’s more than fine now, but this still haunts me. It’s the worst last chance I ever had to imagine.

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My lovely Nana

As a granddaughter I’m sad that my husband never met my Nana. She got sick not long after Joel and I started seeing each other. Sadly she died 2 weeks later, so I never got the chance. If the odds had been stacked a little differently, she would have welcomed him with loving arms and adored our boys. She’d have been an awesome Great-Nana.

As a daughter in law I’ve wished many times that my boys had been able to meet their Grandad. Nearly 14 years on I still regret that distance mattered. That 5-6 hours in a car was so far for us then, so he only got to hold Eldest once. How I’ve wish he could see how immense both our boys are and that we’d see him fill with love and pride. He’d have got to play his pranks on them and taken them on many spontaneous adventures, I’m sure.

As a wife with an incurable brain disease, I’ve seen my husband’s face as I go down for brain surgery. Surgery with a likelihood that it’s fine, but no mistaking the less than 1 in 10,000 chance of a stroke or worse. I see that last forlorn glance as our eyes meet when I leave the ward. Then I see the relief when they wheel me back.

Unconditional love
Relief That I’m Safe After Surgery

Last Chance Decisions

When I was first diagnosed I knew one thing was never going to change. I knew that Joel was always going to be there for me as I knew our love was unconditional. I knew how strong our relationship was from when we nearly lost Youngest.

As my condition got worse, I realised that I was grieving for the last chances to live the old Laura’s life. I gave up for a while and it got messy at times, but Joel put mine and the boys needs first, much more than I could have comprehended at the time.

I can’t even contemplate what he’s been through when I was so ill. I began to realise how many opportunities had been taken away. I pushed my body but I soon learned I needed to listen to my body.

Balancing Needs and Wants

When I finally realised I needed to create balance we could begin to understand our new normal, but still be The McKees. I still wanted to do more but I couldn’t ignore the needs of my family. As I can’t plan for how I’m going to feel,

On a better day we make the most of it but then spending days in bed to recover. We take it day by day and grab every opportunity we can. I’ve realised that we can only control what’s happening, right now!

Living for Now

missed opportunityThere’s myriad opportunities to take a chance every day. I wonder how many we miss and how many might be seen as successes, or if it’s as Thomas Edison said..

I have not failed, I have just found 10,000 ways that won’t work.

Imagine all those missed opportunities because we think there’s more time. Time to grab chances for us or to show kindness to others. We never know a situation, so little thing we do, may make their day.

Affirmations encourage us to grasp opportunities as they arise. It helps us live for the moment and grasp last chances experiences. One such as ‘I let go of fear and guilt’ help me restrain the little guilt demons that haunt me!

When it comes to the future, if I use the ‘I am courageous’ affirmation, I know that everything is going to be okay. If I say ‘I surround myself with positive people’ I know Joel will be there for me if I need him.

I’d love you to experience the freedom and comfort these cards bring, so you can grab the set of positive affirmations that I’ve made for you. They’re only available until March 31st and I’ve put the link at the end of this blog post.

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Free affirmations printable download

Taking a Chance on Me

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Joel and I in 1998 in my last year at Uni

Joel finished his degree a year before me and that left him having a huge decision to make. He had to base it on the 7-8 months we’d had. Thankfully Joel decided to stay in Canterbury working in a supermarket for the year.

I didn’t realise how much commitment he was making at the time and I wonder what would have happened if hadn’t taken that gamble on us. We moved to Sussex and our level of commitment stepped up a notch when we bought our first flat. 

One day we were talking about the future and he just said ‘shall we get married then?’ I seriously thought he was joking but he wasn’t, so I agreed. It wasn’t planned so that there was just a thought in Joel’s mind and he ran with it was part of the magic.

We married in August 2003 and still balance each other perfectly. He has encouraged me to take more chances and I’ve helped him be more focused and plan more.

Unconditional love

Unconditional love is a powerful term, meaning love and affection without limitations; when you’d do anything for that person no matter what. This is usually between parent and child and is the sentiment behind marriage vows; a promise to love no matter what.

Unconditional love is something you have to work at and develops over time, rather than the ideal of love at first sight – sorry romanticals. You shouldn’t ever feel like you’ve failed if a relationship doesn’t work and is never a reason to stay in an unhealthy relationship.

“It is a minute-by-minute decision by both parties to remain committed to each other… Love is expressed by a person’s actions… [and] best expressed when a person chooses to put another’s needs above her own.”

Everyday Health Article

5 Last Chance Opportunities to show unconditional love

These points are based on my experience of 21 years of very few arguments, raising 2 boys who usually handle disagreements with respect and empathy and 15 years as a Teacher. We take opportunities to show unconditional love. These are my own opinions and ideas. * However, If you feel you need relationship support, please seek professional advice.

  1. Never go to bed on an argument. If an argument is over something small, take 5 and consider whether it’s worth wasting time. It could take just one of you to back down first, especially if you’re the parent.  You may feel wronged but apologising for how you reacted is likely to dissolve the tension. If it’s more serious with your partner, you may not feel ready to make up but be honest and say ‘I’m not ready to talk about this tonight.’ Try to plan time to talk properly in the morning. Then say good night. If it’s with your child/ren, tell them you love them but you don’t like what they’ve done. This needs to be made age appropriate but try to make as little drama as possible and say goodnight as usual. You can reinforce it in the morning. When you talk about it, be specific and don’t attack. Try this structure: ‘I didn’t like it when (action) because it made me feel (_). It was because (obstacle) I’d prefer it if (ideal solution). Teach your kids this too so you can all make up quicker!
  2. Good relationships are built on trust and loyalty
    Trust and Respect

    Build your relationship on trust, honesty and respect. In any relationship you learn how to deal with conflict. This TED article (although about the workplace, it has six great tips). Positive language and actions are important to acknowledge. Reward positive actions with a note or a little treat for adults as well as kids. If you show you’re noticing the small stuff, it makes the big stuff easier and you’ll build layers of trust. Be aware of how you bring up issues within the family. It’s vital that any problems are addressed quickly and honestly. Use the structure in #1 regularly so it becomes normal. Embrace vulnerability so hearing what others say becomes much easier. Creating an environment where listening is valued is so important for building respect. When you know that what you say matters, you will become more confident and positive. When you become positive, you will inspire positivity. The cycle of positivity, reward, positivity begins!

  3. Put their needs above yours. When you decide to share your life with another human, you’re making a commitment to meet their needs. You’re there to grow together in any form of relationship. As adults our emotional and physical needs can be met too by cooking a nice meal or taking them on a surprise holiday! The point is, is that you think about your partner, so my fellow bed livers, we can meet our partner’s and children’s needs from our sick beds by asking about their day. If you’ve got a busy life, don’t let this get lost in life noise, don’t take your relationship for granted. We’re all different so some of us need extra support to do this, but if you meet their needs they’re more likely to reciprocate. It may be something to discuss in your relationship.  If one person in the relationship becomes dependant due to illness or disability then this can create strain, but you can still meet your partners needs, you just need to think it through. If you have young carers, meeting their needs can be a worry, but be reassured that you can still do this. If you want some tips, read more here.
  4. Be Affectionate with each other. With children it’s easy, they’re usually pretty affectionate unless their teenagers, although we still give ours a kiss goodnight. (boom, down with their street cred😜). It’s really important to make the effort in our adult relationships because “forms of physical affection…were strongly related to the…satisfaction the participant felt with the relationship and the partner.”     Psychology Today We’ve found that establishing affection at any transition, such as waking up or getting home, we’ve become more affectionate and it deepens our connection (yes still, after 21 years). Those hugs and kisses build positivity and happiness. Although some find public affection difficult, I think it’s important in a relationship; especially around your teenage children! We’ve always loved to hold hands in public (although trickier in a wheelchair). “Affection produces feelings of intimacy, security, significance, and respect in a relationship.” Everyday Health
  5. Show them how much you love them.

They say that actions speak louder than actionsandwordswords! So show you how much you love them by getting creative. Whatever works for your kids: show your love by slipping a note in their lunchbox, sitting playing Lego for hours, leaving notes on the fridge and snuggling in front of a movie. With your partner, focus on them regularly to keep a healthy relationship: giving a foot rub, sending texts during the day, writing poems or creating art from photographs!or organising a date night. And don’t forget to always listen to them! Make what you do romantic and do it at least once a week. Just don’t be repetitive. Or creepy. Or boring. Or immature. Or creepy….

In conclusion

In my opinion, if you wait to do the things you love, you may just miss that chance. Bucket lists and waiting for another day may mean that you missed your chance. If you ever missed that opportunity to show your love and something happened, well….

If you’re reading this with a chronic illness, then this can be even tougher for you to think about. I’ve tried both waiting and pushing through, but in the end I’m up for taking a chance.

Someone took a chance on me and we’ve built conditional love for each other and our boys, of course. But we’ve had many tough times and we’ve been lucky enough to make it through. I hope someone has or will take a chance on you.

I make sure my children know how much I love them every day. I make sure to kiss my husband every time he leaves the house and when he gets home.

Don’t wait to do anything, show you love your someone at every opportunity and don’t sweat the small stuff. We never know what’s about to happen…

Affirmations for a better you
Positive Affirmations for a Better You

You can help yourself achieve the things you want to do today using Affirmations. I’ve mentioned these above.  I’ve created a set of Printable Affirmations that would for setting the tone for a good day Grab a copy of this when you sign up to my occasionally regular newsletter today!  You still have until the 31st March to get your free printable. 

Sign up for your Printable Positive Affirmations Freebie

I make sure my children know how much I love them everyday. I make sure to kiss my husband every time he leaves to go to work and as soon as he gets home.

My point is – Don’t wait to do anything, show you love someone at every opportunity and don’t sweat the small stuff. We never know what’s about to happen! So, if you start living for now, today, then what would you choose as the first thing you’d do?

Chronic Illness Bloggers

Continue reading 5 Last Chance Opportunities To Show Unconditional Love

5 Secrets for a Strong Relationship with Teenage Carers

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5 Secrets for a Strong Relationship with Teenage Carers

Young Carers

According to the ONS (Office for National Statistics), there are 149,000 young carers aged between 15 and 19 – about twice as many as in the 10-to-14 age range. [There are about 23,000 children under 9 who are carers].

There are about 50,000 Young Carers looking after someone with a Mental Health Condition in the UK. There are thought to be 3 in 5 Carers who have depression themselves, due to their role.

I aim to share the secrets that have guided our journey. They’re intended for younger families, caring for any family member, but are aimed at those with a teenage/young carer. I’m even sharing some free printables for you at the end of this post.

This advice is based on my experienced teacher viewpoint, but mostly that of a bed bound mum of 2 teenagers, who happen to be my Carers. It’s been tough, but we’re stronger than ever, as a family and individually, because we’ve worked at it!

My family

As the teen years approached our family, I feared the worst; especially as I was now chronically ill with a debilitating brain disease. How wrong could I be? I absolutely love it. We’ve just adapted our parenting style by listening and responding to each other.

With strong foundations, that Joel and I had worked hard to build together, it wasn’t hard to tweak our interactions. As our boys grow into young men, at 13 and 15 and 6ft+, we’ve found we actually enjoy spending time together – I know, crazy right?

I’m incredibly proud of both of them for all that they achieve. Their teachers recognise their awesomeness and they amaze me with what they achieve, both in and out of school. That they’re able to do so well, with so much else to deal with, is exceptional.

But I’m not delusional! I know not everyone has this and our life isn’t perfect either (erm – teenagers and brain disease involved). However, we’re a happy and loving family with amazing relationships. They are my motivation to keep positive every day!

If you want to find out more, read My story so far

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The McKee’s mucking about Christmas 2018

Parenting Styles

The secrets I want to share with you can be implemented into your family with just a little work. We are have our own parenting styles and there’s no right way. So it’s normal to go through phases of feeling like we’ve sussed it and others like we’ve fluffed it!

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So even if you’re a nailed it with some to spare parent; a doing your best, fair and square parent; a making a mess, laid out bare parent; a higgledy piggledy, up in the air parent; a tearing out your hair parent or a feeling guilty you’re not there parent, these secrets could work for you.

 

What Does Caring Involve For Me

I have a PA (carer) every weekday lunchtime, from an agency providing consistent care. These are some of the things I need help with:

  • Waking up after sleeping all morning,
  • Make me lunch, normally a smoothie as nausea stops me enjoying food
  • Making sure I have accessible water
  • Helping me to get dressed as needed and getting out my clothes each day
  • Picking anything up I drop as I can’t bend down
  • Do chores I can’t such as laundry, emptying bins and making beds
  • Preparing meals or freezing food for another day
  • Organising my medications
  • Enabling me to be more involved with the boys e.g. supporting us bake cakes
  • If I’m well enough taking us out for a cuppa or to the shops

I have a great relationship with my carers and we always have a giggle. I need laughter in my day and they bring it! They’re also always there to listen.

The Impact Caring Can Have

Being a young carer can have a big impact on the things that are important to growing up

  • It can affect a young person’s health, social life and self-confidence.
  • Many young carers struggle to juggle their education and caring which can cause pressure and stress.
  • In a survey, 39% said that nobody in their school was aware of their caring role.
  • 26% have been bullied at school because of their caring role.
  • 1 in 20 miss school because of their caring role.
But young people can learn lots of useful skills by being a young carer.

Carers Trust – Young Carers

When we realised what life was going to be like, Joel and I didn’t want the boys lives overshadowed by caring. We’re lucky enough to have PAs, so the boys don’t miss school, but it can be hard to make school aware of everything they carry with them.

Worry and anxiety have affected their mental well-being and both boys have had to learn how to cope with complex feelings. Life as a young carer is tough as we can see in these quotes.

Carers UK’s annual survey (2015) with over 5,000 carers across the UK revealed that 84% of carers feel more stressed, 78% feel more anxious and 55% reported that they suffered from depression as a result of their caring role, which was higher than findings in 2014.3

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 I’ll discuss how we manage teenage mental health in my 5 secrets below.

Being My Carer Every Day

The boys bring me breakfast and dinner make sure I have water and snacks every day. They know how to support me physically and sort anything Clumsy McClumsypants here drops or spills; like the glass of water in (yes IN) my bedside table this morning.

They need to know what to do if I press my life line and what to say to the Lifeline care team. They’d have to stop playing Xbox and may need to support or help me up if I fell. They may need to help calm me down if I was having a panic attack.

The boys have had to get used to another new cleaner being in their personal space and form bonds with my PAs. They’ve been carers for 4 years now, so are used to it, but there’s still restrictions, such as having to be quiet each morning while I sleep.

They told me the other day that their friends have to do more chores than them. My response was to ask if their friends have to make sure the house is secure and answer a doorbell every time theory mum drops something. I said I was clumsy, didn’t I?

Building a Team

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How many kids would go to their parent and tell them they don’t do as many chores as their mates? This is just one example of how we’ve worked hard to build a family dynamic based on trust, honesty, empathy and care.

We’ve all had to learn coping skills and adapt as time goes on. The stress shows at home mostly, so it’s been important to use the same strategies around their behaviour. This has led to the strong relationship we have now.

As they’ve grown up and I’ve become a little bit more stable and aware, we’ve trusted them with more responsibility. We’ve just managed two nights with Joel went away for work. My Dad (who’s always stayed before) was just down the road if needed.

They wanted to cook tea unsupervised and probably not the tidying up afterward. They have to put the hens to bed, safely away from any foxy loxies and check Jasper Cat is in for the night. I had to be trust they would put the house to bed securely too.

They amazed me with how they coped with all this responsibility. There was no time to think about having house parties or sneaking out the house to meet up with a friend! (not that we’d know anything about ever doing that).

The way Joel and I choose to do this at the beginning, has shaped how we’ve handled the cards we’ve been dealt. Everyone chooses their own path, so I’m not making any comparisons. this is just my experience. Everyone’s path is unique, so follow yours.

But use my 5 secrets to help steer you. Firstly I just need to make it clear that we sought medical advice and were referred to social services for care and support. I’m not a health Care professional, so please ask for help if you need it.

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5 Secrets for a Strong Relationship with Young Carers

  1. Asking for help is the first step. Talk to your GP.  Talk to school. Ask your kids how they’d like the help. You might need family therapy so do try it, if offered. If support given is not right for you, ask for an alternative. The skills we learnt, recognised and have since reinforced; have shaped our family’s daily lives. We learnt how to talk about our feelings, whilst being respectful. and to speak honestly, without breaking trust. I recommend organising a named teacher or pastoral care and make sure to keep them in the loop. This is individual to your needs, but be prepared to fight for this, as support is in high demand. Mental well-being for you all is key.
  2. Let them be angry with the illness. Structure ways for your children to release this, safely. Help them understand that it’s the illness that’s changed everything. The whole family will grieve for life before chronic illness, so explore ways to cope with that. We used diaries, art therapy, music and a good old shout and swear session (oooh, controversial). We’ve found that music is a lifeline for every carer in the family. Being able to lose yourself in a distraction is a lifeline for carers and you!
  3. Develop open dialogue with the Young Carers in your life and find ways that allow them to discuss what they’re feeling and experiencing without fear of backlash. The silver lining of being a bed bound mum, is having time for my boys to talk to me about their day or about something worrying them as soon as they get home.
  4. Find time for everyone to set one goal at the start of each day. You could introduce Affirmations to reinforce positive thinking. See the end of the post for more details and free printables, available til 31st March 2019. Set a time to discuss at least 1 positive from their day. Create a regular time to air issues and reinforce positives.
  5. Give yourself rewards! A really important part of feeling able to succeed, is by rewarding positive language and behaviour. The rewards can be for anything, big or small. Rewards can be verbal praise, but making time for a family reward is important to reinforce positive thinking. For example, you could go out for lunch, bake a cake together or watch a movie in bed. Let them choose most of the time, but it has to be agreed by everyone. The point is to reward the whole family regularly.

To adapt these for younger children

  1. Involve school as soon as possible, both the class teacher and headteacher should know. School may offer extra support, which can be invaluable. Play and Art therapy is in short supply, so if you’re concerned speak to your GP!
  2. Talk to them about what’s happening in a way they’ll understand. Help them express their feelings using puppets, library books and roleplay (Drs/patient).
  3. Tell them why you’re going to hospital/in pain etc. They may know more than you expect, so let them lead. My rule is that if they’re asking about it, then they’re ready for answers. Just be prepared for a ‘why, but why’ session!
  4. Ask them what they want to do that day on the way to school, you may even find out more than asking at the end of the day! Start a positives jar by everyone writing (for them if needed) ONE positive from their day. Set a regular time, to open the jar and read some. My favourite pulling out ‘cuddling with my Mummy’ on a bad day.
  5. Make time for rewards, they don’t have to cost anything, just do things as a family.

A last word and some links!

I want to help others have positive experiences, even on tough days. So I’m sharing these secrets for you. Families are unique, though, so there’s no one size fits all. Take what you want from my 5 secrets, but remember these things are key:

Ask for help! Young Carers may have to do more at home than their friends, so schools should provide support and make allowances.

Make sure everyone truly understands and enable your kids to express how they feel. Create a safe environment and look out for signs that you may need to step in.

A great team relies on good communication which is honest, loyal and respectful, so be a good role model. Recognise small wins! Celebrate at least one good thing from your day.

If the life you want for your family seems a long way off or you’d like some reassurance you’re doing okay, then I hope this post has helped. Please ask me questions in the comments and tell me how you make life positive for young carers and your family.

Resources 

Carers Trust -Support for Young Carers

Young Minds – Looking After Yourself aa a Young Carer

NHS – Young Carers Rights

Carer Gateway – Advice for Parents & Teachers of Young Carers

Carers UK – Hidden Depression

Chronic Illness Bloggers

Sign up for New & Exclusives – Help for Young Carers

Do you want to be the first to know what’s coming and get your hands on exclusive deals? I’ve created a set of Printable Affirmations that would be perfect for setting the tone for a good day for Young Carers, as mentioned in Secret number 4 above. Grab a copy of this when you sign up to my occasionally regular newsletter today!

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✋ Hey there! You could really help me out. Just one minute of your time to press that share button helps me so much! You’ll literally make me do a bed-bound happy dance. Now there’s an image for you!

How To Focus To Stop Being Flooded With Worry

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How To Stop Being Flooded With Worry

The Worry Flood!

What on earth am I going on about? Worry is a part of human nature and is a shared experience. However the way everyone experiences worry is another thing…

I know this idea of a Worry Flood might sound strange, but bear with me and I think you’ll see what I mean…well, I hope so! I can only describe it in ‘technical’ terms as a weird VaVoom drop and then the rush of worry that floods you from head to toe!

More simply, this is that feeling in the pit of your stomach before your heart races! The sickening sinking feeling that joins in can last seconds or days. I imagine there aren’t many people that haven’t experienced it at least once in their lives

The extent of worrying for you and me

Unfortunately some of us (*raising hand awkwardly even though no one’s home) worry to such extent that it can cause debilitating anxiety or even panic attacks. This is when worry has gone from flood to tsunami and your techniques stop working.

You might be in a very similar situation to me, but because of all sorts of factors, you may be able to brush off that Va-voom feeling quickly. Then take a deep breath to reboot, gain your composure and can carry on with what you were doing.

However, when I forget to check myself, worry quickly swirls into a whirlwind. Guilt, doubt and fear enclose me and I get caught in the eye of the storm; in panic mode until the dust settles. This happens less and less as I’ve had help from experts.

I’m not an expert, so if you feel like this, please seek medical advice.

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Worry becomes anxiety or panic.

Worry is experienced to varying extents but everyone shares that initial adrenaline rush. That heart quickening and stomach sinking feeling, is a common experience, but there are vast differences in how you and I then react. The extent of one person’s worry is almost impossible to comprehend.

How does worry affect you? Are you a worry wort or chronically concerned? And why the heck does worry exist? First, the science geeky stuff behind what you and I feel and experience.

Why does worry exist?

Life is full of uncertainty and this is what drives solutions and new ways to look at things. You can only prepare so much for things that are going to happen, at some point. When you can prepare, you’re able to take back some control of the situation.

And that’s the key point: Control!

You only have control of what is happening to you now! You can’t control what has happened; good or bad. But you can learn from your mistakes and successes to shape your future decision making so even without full control, you forge your path.

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A lack of control… Photo by ehsan ahmadnejad

Having a lack of control over the future is often that pivotal moment when apprehension turns into worry. You can only solve possible future problems to a certain point, before you literally can’t prepare anymore.

You might start trying to predict every eventuality; asking ‘what if’s’ and going over and over problems. All of that is going to dredge that worry monster up – I’ve been there!

How to react to feeling flooded with worry

If you’re still here then I’m guessing it’s pretty likely that you’re a worrier. Hopefully you’ve learnt how to handle worry so you can avoid destruction. It’s vital that you do build these strategies up so that Worry doesn’t stop you living your best life.

I’ll throw you some life lines a little further down the page, so stick with me a bit longer and learn the skills I’ve built for the least disturbance in my life.

But first the sciencey geeky stuff!

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The Sciencey Geeky Stuff Photo by Toni Cuenca

a) You put up barriers, like sand bags, doing all you can to avoid failure. You avoid any vulnerability, that you are never budging from that comfort zone. You’ll miss out on learning about your potential and becoming a stronger person. You stop living!

b) You’ve built defences so you don’t have to worry about anyone or anything. You see where the day takes you. Not the best long term plan, but I get it, you’re protecting yourself. You could end up living a very lonely life though.

c) You let the water freeze around you, creating a protective bubble. When you start to feel uncomfortable, you give up and take the easy option! You’ll forget what the world has to offer to you.

I’ve just described 3 examples of The Stress response: fight, flight or freeze. All primal examples of how animals respond to fear. I’ve explained The Stress Response in this blog: How to Create Clarity in a Busy Mind in 15 minutes

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Photo by Darrel Und on Pexels.com

I also wanted to share this article by James Clear about The Evolution of Anxiety. James is an author and photographer who shares the latest scientific research about human habits and potential.

A giraffe makes immediate choices such as: “When you are hungry, you walk over and munch on a tree. When a storm rolls across the plains, you take shelter under the brush. When you spot a lion stalking you and your friends, you run away.”

“[M]ost of your choices as a giraffe (…) make an immediate impact on your life. You are constantly focused on the present or the very near future.”

Animals live in a state scientists call an immediate-return environment. However, as we’ve evolved we’ve lost that immediate reward of food, shelter or safety.

“Most of the choices you make today will not benefit you immediately. (..) [E.g.] If you save money now, you’ll have enough for retirement.  (..) [The things we] worry about are problems of the future.”

Humans live in a Delayed Return Environment. “[This can] lead to chronic stress and anxiety,(…) because your brain wasn’t designed to [work in this environment]”

Why do you need to know this?

You need strategies that help you respond to today’s societal expectations. You need techniques to help you avoid stress response. Ideally these need to be so practised that they’re what you turn to in a split second, when you recognise your triggers.

This takes time and dedication, working on yourself and ideally having an expert to guide you. I’m years into this and still get tripped up sometimes. If they’re available at your fingertips, you can press pause on the Worry Flood and get back to dry land.

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Build a dam to divert the Worry Flood into canals Photo by Quintin Gellar

You build a Dam by de-watering (in this case) the habits you’ve used for years. Then you learn  distractions and ways to create calm. Once you’ve done this you can use floodgates to divert the Worry Flood in to a canal, giving you more control to deal with smaller sections of the bigger problem.

Once you’ve curbed your anxieties you’ll be more equipped to counteract the Worry Flood. The less your thoughts are eroded the less you’ll struggle. You’ll be armed because use you’ve built barricades and have a safe place where to continue to grow

How it feels to be flooded with worry!

I’ve been out of my depth many times and lately I’ve been struggling;  worry that has been overwhelming at times. I’ve failed to recognise the Amber alerts and have become engulfed with anxiety and panic attacks. So I have to start rebuilding again.

I realised I’ve been stuck in this whole delayed return environment phase. Behind the scenes, I’m developing all I need to launch a better Paprika Jewellery & Accessories. But the reward is a way off yet and with the pressure I put on myself I just didn’t spot the triggers!

I’ve spent the last few years building easily accessible skills. I used them regularly so when it comes to times like this; I’d have some control to slow down the flood. When I realised it hadn’t worked, I ensured to get my routine back. Now I’ve got my sights back on my main goal of being well enough to spend time with family and friends.

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How to Focus when that flood warning is given

So I want to share my top tips for controlling the Worry Flood, by diverting the overload into canals where I could catch smaller sections of water. This allows me to use my strategies to rebuild, dealing with smaller sections of the bigger problem.

These skills have become my go to, picked up through research, forums and work with qualified practitioners. They’re personalised for my triggers, but I’m able to share them in a way that you can developthem for your own needs. Remember, it’s not just building walls and they may need you to step outside of your comfort zone! 

 My Top Tips for Worry Flooding

  • The 1st thing you do each day is set yourself just 1 goal that you commit to. This can be about anything. Check in with yourself a few times a day to see if you’re on track.
  • At the end of the day, write a done list! it feels really good to reward yourself by knowing what you have achieved and think less about what you haven’t. I try and make this really positive and celebrate things I’m happy, proud and grateful for.
  • Use a timer to focus on productivity. I do this when writing and on social media. I need to balance time spent online with energy for my family and friends. You can download a free planner here- How to Create Clarity in a Busy Mind in 15 minutes
  • Plan to keep yourself on track. I love planning, but use my long term goals to keep on track as I write my planner each week. If I don’t achieve something, I rub it out and reorganise. Breaking down a problem into chunks make it easier to control.
  • Block similar work together. For example, I find all photos I need in one go, instead of with each blog. This is just right now that I’ve explored what works for me.
  • Use music to set the tone. I really missed music when I was really poorly. I’m bringing it back in to my life gently, but with purpose. I use an album as a timer; a playlist for productivity or ambient sounds for concentration.
  • Use the notes on your phone to keep track of your ideas whenever and wherever. I use it to plan my writing or to keep track of medical notes. I know I’ll always have what I need for some control in unplanned or stressful situations.
  • Recognise the little voice in your head. Don’t miss the Amber flood warning, practising your best on the spot techniques. I write stream of consciousness rants to stop me going over something that can’t be changed. It’s also helped me stop saying sorry so often and use more positive language than negative.
  • Meditation is the best skills to learn if you worry. It helps you build layers of protection and grounds you. Learn when to be vulnerable and when to let go. You can learn quick centring techniques easily. I meditate every day and I’ll tell you why in this post. 5 Meditation Myths Stopping You Relieve Hidden Stress
  • Learn breathing techniques. It’s especially effective when for me, when I feel that first wave of worry. Try putting a hand on your heart or stomach and take a few deep breaths to compose yourself.  There are many techniques, so experiment to see what works for you. I recommend this guide: 1 minute breathing exercises
  • Live in the moment. As I’ve said, now is the only time you have control of your next choice. Step outside your comfort zone and embrace life right now. Be present and live to your fullest potential. If a planning freak like me can do it, I’m sure you can.
  • Develop a sleeping pattern that works for you. So 8 hours in a dark room at the same time each night, might be your thing, but let’s get real; this isn’t going to work for everyone. I sometimes get no sleep due to pain, bleurgh…. But if I sleep well, I cope with the pain better. Find things that help you relax and try setting a bedtime routine. You should be more equipped for handling worries.
  • Face your fears. I’ve embraced things that scare me from my bed, so try not to get hung up on bolstering barricades. Do something that makes you uncomfortable. I think you’d be surprised by how it makes you feel and the response from others!
  • Affirmations are statements you can use to manifest your potential and strengthen your self belief. They help me so much that I’ve designed a free printable available until the 31st March, if you sign up to my newsletter. Check out the link at the end of this post. Here’s a guide to use them to set yourself up for a very productive day. 5 Morning Affirmations To Guarantee A Successful Day!

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Learn from my tips to develop your own strategies for worry and anxiety Photo credit Natalia Figueredo

In Conclusion

I hope I’ve not been too metaphor happy, so these are the key points to take away:

There’s many ways to protect yourself from too much worry, so explore and find what suits you. Build up layers of protection, whilst also being vulnerable, Step outside your comfort zone and remember the power of diversions.

Fight, flight or freeze (stress response) are reactions to perceived threat. This is a primal response, but we know experience that from stress and worry. We also have to wait for reward most of the time, which can heighten our anxiety. Develop skills and strategies that give you some control and help reduce the extent of your worry.

When planning ahead, focus on leaving room to reflect. Writing your concerns can help stop you overthinking.. You can only control right now, so practise different strategies that focus on letting go of control.

*This is based on my own experiences and is just my opinion, unless referenced. If you are struggling with stopping worry overload, please seek medical advice.

I’d love to know how you focus to cope with worry in the comments! 

Chronic Illness Bloggers

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CLICK HERE FOR FREE AFFIRMATIONS

How to Create Clarity in a Busy Mind in 15 minutes

 

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How to Create Clarity in a Busy Mind in 15 Minutes

I don’t know about you but the beginning of the year is a busy brain season for me. I’ve been creating goals, working on new ideas and doing lots of training. My brain’s been on overdrive, with so much that I want to do this year! I’m going to share my own busy mind experiences with you and my top tips for clearing mind clutter.

Thinking Ahead 

Our brains can easily go into overdrive when we start acting on our goals and it’s tough keeping all that information in our heads. I wrote about planning the year ahead in this post:  How to Write Awesome 2019 Goals Without Feeling Overwhelmed

  • I’m sharing my social media plan printable with you. It’s great for anyone who wants to limit time on social media, but I did create it with Chronic Bloggers in mind. If you want productivity over busyness, grab it at the end of this post ⬇️

My problem with plans, is that I want to just crack on and forget I’ve got brain disease! I’ve always had a passion for planning, but it doesn’t always go to plan. I go full-on Laura mode, with ideas taking over every tiny bit of headspace left I have left. The bits not backlogged with blood and CSF. Ewww, sorry for that image. Wondering what’s CSF? ➡️ What is Idiopathic Intracranial Hypertension/IIH?

I’ve not planned properly, since having left teaching, but this year I got busy creating planning grids for my blog, email and business strategies. I hadn’t planned to make them, which messed up my plans. 🤔 I was trying to do it all, forgetting to review and adapt and I gave that anxiety monster a VIP pass! As I practise grounding strategies often, I was able to calm my busy mind quickly and worked on strategies for organising my thoughts.

Write things down to make sense of your thoughts

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To Do Notes are ok if they have some structure to them

 

If your brain’s overworked, get a pen and some paper and write your thoughts down. I don’t think ‘to do’ lists, are a productive way to form clear ideas from jumbled thoughts. They’re great for quick reminders, but not so great for bigger issues. So what could you use instead? Here are my top tips for creating clarity in a busy mind.

I normally use a diary but this year I decided to try a more structured planner.  Structure is important for focusing  your thoughts, whichever format is for you.

 

 

 

I brought my planner from StarCreationsCo on Etsy   It’s great because:

  • It has a yearly and monthly calendar for planning ahead ✅
  • it has a space for me to write my goals ✅ (I want those everywhere)
  • It has a monthly page of squares for bullet journaling, so I can test the idea ✅
  • It has space to plan, reflect and add your most important jobs ✅
  • Most of all it’s really pretty and I can add stickers and washi tape ✅

You can see where I’ve rubbed out where I’ve planned too much here. No filter…

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My planner has a week to view and is formatted to helps me organise my thoughts on paper

Reflection 

At the end of each day I always write 3 positive things which happened that day. There’s not quite enough space in the planner. So I’m using a gorgeous diary covered in recycled vintage Korean fabric from my friend’s lovely Etsy shop – The Vintage Bookworm. I write:

  • I’m Happy because…
  •  I’m Grateful for…
  • I’m Proud of…

It’s so important to reflect on each day, each week, each month and each year to have a success with positive mindset! Take time to celebrate your successes, big or small. Reward yourself with a pamper, a bubble bath or just a pat on the back. These rewards trigger the pleasure centres of our brain and make us want more positivity.

 

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An overly busy mind leads to overwhelm

An Overloaded Mind

When things get too much and start to become a mess in my head, I create head space by getting my ideas down on paper or notes on my phone. I’ve been creating structure so I can be productive and focused. I’ve made a social media plan a free printable for you ⬇️

 

 

My anxiety is usually from having an overloaded mind and this still gets the better of me sometimes. Structuring my thoughts and writing them down always calms my mind. I’m sharing the strategies I’ve built up over time with you and some I found on these sites;

Anxiety Canada.com  and Anxieties.com

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How To Create Clarity In A Busy Mind In 15 Minutes

 

Top Tips for Creating Clarity in a Busy Mind in just 15 Minutes

 

When One Big Problem is Bothering You

  1. Set a 15 minute timer and free write – This is a cathartic activity and works best with a real pen and paper so that you can let your thoughts spill onto the paper; clearing your mind clutter. If you avoid doing this your problem will get just bigger in your head. If you write it down, it may not seem as big a problem as you thought!
  2. Speak to someone you trust – Find someone you know is a good listener, such as your partner or good friend. Set ground rules before you start and be clear that you’ll only spend 15 minutes talking about this. Going over and over the problem will create more negativity and isn’t good for your headspace. Say it, listen and move on.
  3. Act on your negative feelings, before it becomes a problem – Are you feeling Stressed, Nervous, Frustrated or Anxious? Set a 10 minute timer and use this feeling to turn the problem into a question – e.g. Why am I anxious about going to the doctors? Then quickly list the reasons that come up. Write your answer down using positive language i.e ‘I can stop feeling anxious by writing my questions’.
  4. Be solution focused
  • Using a 3 minute egg timer – write down your problem. You can create a mind map or flow chart if visuals help you.
  • Turn over the timer – write down your negative feelings about this problem. You may have many or just one. Write them as one main sentence about why you feel that way e.g. I feel really nervous about this job interview.
  • Turn over the timer – write down what’s stopping you solve this e.g. I’m nervous because last time I forgot to say…! Be specific and don’t make assumptions.
  • Turn over the timer – think about your ideal solution or a 1st step. Write this down e.g. I’m going to make notes on flash cards so I remember to say…

Some problems will need more than 15 minutes to solve completely, but these strategies can be adapted. If you ignore these big problems they’ll start to affect your health.

How to Cope with an Overactive Mind in 15 Minutes 

  • Exercise daily – Daily you say? Yes, daily! I don’t mean a full on work out, we’re talking about 15 minutes here! You could: Take a 15 minute walk round the park, do 15 minutes of reps/sit ups etc or try a 15 minute morning yoga stretch. Exercise helps clear your mind and releases serotonin, which makes you feel good! Even from bed I do bed yoga (Yep, it’s a thing) most days. *Please make sure to check with you Doctor before starting any new exercise routine.
  • Set a daily worry/thinking time – This one might sound strange, but you can retrain your brain by setting a regular time to sit quietly for 15 minutes and let those thoughts free. This only works if you’re able to distract yourself the rest of the day as we don’t want to lose you down that rabbit hole before you get to that time.
  • Carry a little notebook and Pen – This one might seem obvious, but it’s a must. I tend to use my phone’s notes, it just needs to be portable. Offload your thoughts quickly before they get too heavy. If you’re a night worrier then keep one next to your bed too. Just set a timer for 15 minutes.
  • Meditate regularly – Many of us struggle to fit this into our lives or think it’s too hard. I’ve used meditation daily since becoming ill as it’s known for creating calm. At first work on controlling your breathing and let your thoughts come to mind. Then let them go by focusing back on your breathing. A guided meditation will talk you through this process and there are loads available for free on YouTube or apps, such as Insight Timer. This is one of the top 5 things that help me stay positive. I’ve written more on this here. These are both great guided meditations for beginners.
  • The Honest Guys Body Scan Guided Meditation
  • Jason Stephenson Beginners Guided Meditation

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Use Meditation to focus and create space for your thoughts, before letting them go.

  • Turn negatives into a positives  – Set a 15 minute timer and grab a piece of paper. Draw a vertical line half way and write everything busying your mind. Then look at each one separately and try to turn it into a positive statement. E.g I’m not sleeping well, I’m so tired  | I will go to bed early and sleep will happen. This redirects your thoughts and establishes positive language, which helps you to remain focused and find solutions quickly.
  • Use Affirmations for daily positive thoughts – I use these to focus on the big dreams, I dare to dream. They help keep me positive even on the worst days when pain and/or anxiety are off the charts! Affirmations are positive statements or intentions that tell your brain___ is totally going to happen! Using these daily can help you become who you dream of being! I’ve used them successfully for three brain and skull surgeries 😵. If you still want to be rid of negativity, I can help. I’ve created a set of affirmations for my Etsy shop and you can get your hands on a free sample today. See details below ⬇️
  • Use a strategy to reduce the time you spend on Social Media – Let’s face it, we can’t get away from social media and as a blogger you need it. I take a total break or limit the number of sites I’m on when I need to rest. I recommend using an app to schedule your content ahead. You can be more productive by planning in bulk so that you can focus on engagement for 15 minutes before you post. If this is your style then please download my free social media planner printable below ⬇️. I created it for Chronic Illness bloggers, but it can be adapted for anyone.

Social Media Planner for Chronic Bloggers

Social Media Planner for Chronic Illness Bloggers using 15 minutes Engagement time before posting

In Conclusion 

Please take away the most important message from this – You need to write your thoughts down to make sense of what you’re stewing over. Set up regular habits to kickstart a cycle of positive thinking, reflection and reward. It’s really worth taking 15 minutes to convert your thoughts into beautiful ideas or solutions and it’s just as important to look after your brain as the rest of your body! Try out some of these ideas to find what works for you!

I’d love to hear from you if you try any of these out or want to share ideas that help you. Sharing is caring and with mental health, we need to keep an ongoing conversation!

Before you go…

My Etsy shop The Paprika Jewellery aims to support positive thinking by creating designs from positive themes. Jewellery & Accessories made from the soul, for the soul.

Want to be the first to know what’s coming and get your hands on exclusive deals? Grab a 15% coupon code for your next purchase in my Etsy shop and a free printable sample of my ‘Positive Affirmations’ by signing up to my occasionally regular newsletter today!

Click here to subscribe and grab your freebies! img_2933

Chronic Illness Bloggers

5 Morning Affirmations To Guarantee A Successful Day!

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5 Morning Affirmations To Guarantee A Successful Day

Hey there, are you someone who needs a bit of a boost in your day?

Maybe you’re feeling like you’re missing the mark at work, that your relationship’s doomed, that you’re useless because you’re chronically ill or that you’re just having disastrous days.

job12-280-chim-00918If you’re a negative thinker or a self-sabotager and the life you want seems a long way off, then this post’s for you! I’ve got tips for making positive changes by just spending a few minutes a day on affirmations. There’s even science to back that up! So now with your morning coffee you can start your day the positive way!

 

What are Affirmations?

Maybe you’ve heard of Affirmations but think they sound sappy or too out there. Maybe you don’t think they’d help as you’re ok, just not as successful as you’d hoped. Stick with me and I’ll show you how affirmations help you build a positive mindset.

Before I start you off on your journey to a successful day, you need to know what the deal is. I first heard of Affirmations about 15 months ago and now spend a few minutes each day on them. I think much more positively now and want everybody to realise they can find positive in every day. Here are a few simple tips to help you!

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Set Positive Intentions

 

Affirmations help you set an intention for that day (or however long you need it for), starting with ‘I am’ for example. They’re a great tool for helping you think more positively and if used regularly, each day will be more positive! OK, so your thoughts won’t change overnight, but I can assure you that they’ll work if you stick with it.

 

 

You use something you want to feel, do or happen and write it as though it’s already happening. So instead of ‘I want to feel loved and happy’. Your affirmation says ‘I choose love and happiness’.

You may have to do a little bit of work to crack the code at first, but you’ll soon be starting your day the positive way. So if you’re feeling low or a bit meh; then this is such a simple way to structure your thoughts and create a positive loop:

positive thought = positive actions = self-worth = positive thought and so on.

How Affirmations Work

For an affirmation to work fully, you need to trick your brain. A bit like changing the TV remote’s batteries, you need to put negative and positive in the right place. Instead of matching them to a symbol, you need to rewire your thinking, especially if you’re a Negative Nelly!

To rewire your brain, you have to make Positive Polly drown out Negative Nelly. To do that, you need to say the affirmation out loud, more than once! Just like exercise to improve our physical health is repetitive, any exercise to improve our mental health needs to be repetitive. Practise makes Positive!

To Create this positive repetition, you could write them in your journal/diary, put them on a memo board/fridge or record them using a voice memo app and listen to them wherever you are. I use all 3 of these for maximum impact!

Each time you create these positive responses from affirmations, your brain kicks in the reward mechanism. I won’t get too sciencey, but if you use affirmations about your most important values, your brain will soon begin to have positive reactions.

These positive reactions create a reward, such as increasing your self-worth. Once your brain gets a reward it will want more. You’ll start thinking and acting more positively. You’ll value yourself and feel a sense of purpose. You’ll want to look after yourself more and start creating more positive than negative in your life.

I want to start you on this journey, so read on and see how much it helped me and get yourself set the 5 affirmations to start your successful day.

**Disclaimer – this won’t happen overnight! You’ll have to put the work in!

My Journey with affirmations

One of my favourite affirmations is ‘I replace anger with compassion and understanding’. When I first picked it from my set of cards, I wasn’t having the best day. I was angry with myself about something (I’ve no idea what) and almost put it back in the pack!

When I say I was angry with myself, I really mean that I felt guilty about something I probably should have done. It’s always been a habit of mine, but when I was still  processing my chronic illness I felt like this a lot!

Anyway, I left it on display for a couple of days and as suggested, I read it often and would say it too myself in my head every so often, as I wasn’t cool with saying it out loud at first. I started to feel calmer soon after making that choice to keep that card.

I started to feel less frustration and guilt and began to feel more positive. As I stuck with it, I found those Negative Nelly feelings were getting drowned out by Positivity Polly.

The more positive I felt the more positive action I took with my self care, which led to more positive thinking. And so the cycle continued and I was hooked!

5 Morning Affirmations to Guarantee a Successful Day

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5 Morning Affirmations to Guarantee a Successful Day

So this is what you’re here for. If you’ve skimmed to get here then do make sure you know what you’re doing, you cheeky thing! I’ve made one for you and a blank one to put personalised affirmations in.

You can download these here: Morning Affirmations

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I am full of gratitude and inspiration affirmation

  1. I am full of gratitude and inspiration
  2. Today is a wonderful new day, full of success
  3. I am open to positive change
  4. Today I will share my knowledge with others
  5. My ideas are worthy of being shared

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Blank Affirmation design for personalised affirmations

These are simple affirmations for success and to use each morning to set you up for a great day. Why not have a go tomorrow morning and come back and tell me about it!

If you’d like access to more free affirmations, then just sign up for my news and exclusives emails, using the pop up form or the link below. 

Sign up today for your free printable Affirmations cards

References

https://www.louisehay.com/affirmations/

If you’re really into Science then this explains why affirmations work and what effects they have on the brain. How Self Affirmation affects the brain

 

Chronic Illness Bloggers

How To Fulfil Your Destiny When Time Seems Vast.

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How to Fulfil Your Destiny When Time Seems Vast

How to Fulfil your Destiny When Time Seems Vast.

Thoughts and Poetry on Chronic Illness and the Vastness of Time.

Have you ever wondered about your Destiny? 

Maybe you’re not into fate or destiny, but I bet you’ve got at least one big dream for yourself, or a vision for the world. But it can seem like there’s just so much time that you don’t need to worry. Or like there’s just not enough hour’s in the day! 

I’ve been thinking about this a lot lately and 2 things come to mind. 

Destiny.

Ok, I know this one sounds a bit hippie, but I’ve been thinking about my purpose in life since being diagnosed with chronic illnesses and how this affects my outlook on life. I’ve realised that it’s to be there for my husband and my kids! 

I’m so lucky to have Joel in my life. He’s everything to me and who knew when we met 21+ years ago, that we’d be living this life now. I found my best friend who gives me strength to beat the obstacles every day. 

Yeah, so I’m stuck in bed most days but we adapt and still have fun, laughter, love, honesty and support. He does so much. I couldn’t ask any more of him! So I wrote this poem for him! But I hope something in it resonates with you too.

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Destiny Of Our Time. An original poem by Laura Mckee (All Rights Reserved)

Do you have someone special in your life? Do you have a Soulmate?  I’d love to hear your stories too. 

We have 2 amazing teenage boys together. When anyone meets them, I receive comments on how polite they are. That’s just incredible to hear as a parent. I mean, we did put in a lot of hard work when they were little. Those foundations have enabled them to develop empathy and an understanding of the wider world, so that they’re very caring.

When I was teaching, even though I was part time, it was really hard to juggle everything. So I’d often be collecting the boys after 6 and then cooking tea, do8ng bedtime and then getting back on with work.

Now I get to see them every day after school for a proper chat. We have a really honest relationship and they feel comfortable talking to both of us. We also sit and watch movies together that appeals to their sense of humour too.

I was so scared of having teenagers, but I’m really lucky as I have a great relationship with them, as does Joel, and in my opinion, It was all meant to be. I know how lucky I am., but we’ve worked hard for that too!

Whatever your situation is, there’s something you were destined for. Being a great mum, having a great career or anything else that makes you the awesome human you are! 

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For small creatures such as we the vastness is bearable only through love. Carl Sagan

Time 

We often think we have all the time in the world – that it’s vast. But I’ve come to the conclusion that we don’t actually have that much time! I’ve always wanted to do as much as I can in life, so when I found out I had an incurable disease, it was a huge adjustment. How could I still enjoy life, when the outside world made me so ill?

I had no idea in January 2014 when I fell ill how much time this Illness was going to take from me. I had no idea when I was diagnosed with Idiopathic Intracranial Hypertension. I had no idea until I’d really and truly grieved for my life before being sick. So far it’s only been 1473 (I think) days and I’ve spent most of that in bed!!

I can’t live the rest of my life like that! So I made the decision that I had to make the most of every day, even the bad days. I’ve focused my time on resting when I need to, so that I can spend my time with my family and friends. 

I try to rest (I’m not so good at completely resting still) on Mondays and Fridays and obviously any other days that I feel too poorly to do anything on. When I say I do things, I mean that I write a poem or a blog or do the social media and marketing I need to for my business.

I’m still trying to get the right balance with this and not keep comparing what I can do to what anyone else does, even if they’re chronically ill too! It’s so hard to be a doer, when you can’t do!

So also still see my friends unless I’m not going to be good company. I still go downstairs on the weekends, even if it’s only for a couple of hours.

I felt quite unwell all weekend, but even after saying to Joel that I felt too ill, I reminded myself of this promise I’ve made. I went downstairs both days of the weekend. I even helped Youngest prep and organise 2 courses from his Wagamama cookbook (a Christmas gift).

I love cooking and he loves cooking, so we’re trying to make something together each weekend. It’s really helped me to start bringing the things I loved before getting ill back into my life as much as possible. So,, I didn’t quite finish the job and had to hand over to Joel for the cooking part, so I could go back to the sofa as I was shaking.

yeah, the4e’s always fall out from doing things, but even more so if I’m not that well at the start. So yes I didn’t really sleep for a few nights and yes, I’ve been in pain all week. I’m just about okay now and it’s Thursday! Do I wish I’d stayed in bed all day instead – NO WAY! **Full disclosure: I was in bed most of the weekend too!

My point is, is that we have a finite time to be who we want and dream of being. We have a finite time to be with those we love and enjoy spending time with on this Earth. I don’t mean to be somber but it’s true, whatever you believe. I don’t mean to start a religious/Theological debate here, so if you disagree, well, there you go, we’re all unique!

Back to my point:

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You are alive quote

What are you waiting for?

It’s not just going to arrive in your lap is it? You have to work for it and illness or negative thinking shouldn’t derail you! It might mean a diversion and that’s fine, you do you! Just don’t let pain stop you living!  Find what motivate you and use it! Find your inner strength and just keep going! Whether you have chronic illness, a mental health condition or you’re fit and healthy: don’t keep putting off things. 

Spend time with those you love. Think about what you bring to the world. You’re unique and your experiences make you who you are. Find your sense of purpose. 

Embrace it, embrace time, embrace destiny, embrace life! 

What’s positive in your life? Are you making enough time for them/it?

 

Chronic Illness Bloggers

5 Meditation Myths Stopping You Relieve Hidden Stress

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5 Meditation Myths Stopping You Relieve Hidden Stress

Meditation Myths

Are misconceptions about meditation preventing you from relieving stress and pent up anger?  If you want to learn how to develop techniques to think more clearly and positively, then find out how meditation can aid better sleep and restfulness. Find out how releasing negative energy through Meditation can help you live a happier, healthier and more positive life. Please don’t run away – I know the M word is scary as, but if you’ve got any investment in reducing stress levels, then keep reading!

*DISCLAIMER – All thoughts are my own, backed up by genuine research. Please don’t confuse me for a Doctor or anyone educated in Meditation. I just like it a lot!

I think Meditation is one of those Marmite (American? read this) words. Either someone snores you to death talking about Om postures and staring at a candle for 3 hours or the tumbleweeds roll when you mention it. No one wants to talk about 3 hour candle watching, so if you’re a sceptic, stick with me; it doesn’t have to be this way people!

If you’re in the ‘love it’ camp, please read this to consider if you’re adding to these myths. If you’re in the ‘hate it’ camp, then please read this to learn why these myths are giving meditation such a bad image. The word ‘Meditation’ evokes feelings of confusion and disinterest, even in a world where you can’t move for talk of self care!

But before I dive into the myths, I’d like you to reflect on your character, consider your day ahead or the one just gone and remember what your big goals/dreams are.

Reflect

I wonder what goes on in your everyday life and what you wake up to each day. Do you fret over the frenzy or dread the drudgery of your day? Are you fashion frantic or gagging for the gym?  A vocal vegan or a loudmouthed lobbyist? Actually, don’t answer those last questions! My point is, whether you’re a Conscious Charlie or a Trendsetting Tara, you’re expected to live by rules created by someone you’ll never know.

Consider

24 hours a day, we have access to news, emails, social media, shopping, partying and more. We drive when we could easily walk and lose that feeling of holding a real book as we download them. We have the TV on late at night, affecting our sleep and eat microwave meals instead of cooking even a simple omelette.

Remember

I believe we’re losing the art of engaging with our world. Forgetting to create magical moments for our children, like those from our own childhoods. For me it’s cooking crumble with my Nana and hauling 20 books home from the library. What about you? Do you talk with your family about their days? Do you actively take baby steps towards your ideal life and focus on your family’s hopes and dreams?

As I sat with my youngest and taught him how to make apple crumble without a recipe, I realised our responsibility to pass down the simplicity of life: before technology. The smells, sounds, look, feel and taste matched my memories of Nana and I in the kitchen, I knew she’d be smiling down on us. This was the first cooking I’ve done for a long time, as I need help, and it was wonderful. It was such a calm, peaceful and gratifying activity.

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Hidden Stress Can Result In Pent up Anger

Hidden Stress

We must do what we love, but our zest for success can seep into every area of our lives. We go to sleep with our phones in unnatural light. We compare our lives to the ideal image filling our newsfeeds. These are the hidden stresses of our fast paced world and can only get worse.

Without knowing it, we’re under strain from overwhelm. With no warning, sneaky stress can creep up on us and invade. Read more about overwhelm on this blog post. We all need to find some head space, so that our brains don’t fry and our bodies don’t burn out.

Headspace

I’ve been thinking about the vast space in our noggins for a while, but then read this article and found that we’re using most of our brains most of the time, even whilst sleeping. “The brain is constantly making new connections and breaking old ones” so surely we need to do as much as we can, to keep our grey matter healthy.

This made me consider how much we can balance before we buckle and whether we have any control over what is going on in those active minds. I concluded that we need armour in case of a headspace invasion (I think I may have just revealed my secret geek 😲). This brings me back to Meditation! You thought I’d forgotten then, didn’t you? 🤔

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5 Meditation Myths Stopping You Relieve Hidden Stress

Meditation Myths

If your reaction to this heading is hostility, then maybe we should part ways here – but you’re always welcome back of course. However if you can bear facing your meditation anticipation, then these are the 5 main excuses used when that word gets mentioned:

1. I’ve done it before and still have the same problems, it just didn’t work!

2. I can’t be quiet for long enough to read this post, let alone silence my mind!

3. I don’t have any time for it, there’s just too much in my life already!

4. I don’t really need to do it, I’m fine as I am thanks!

5. I don’t do that sort of hippie nonsense, sitting with my legs crossed and all that!

All that negativity gives me the heebie-jeebies. Anyway, any of the above rsound familiar? I bet you’ve said at least one of those. You’re not alone, meditation is misunderstood, but remember that busy mind I’ve unmecically diagnosed? That’s you, that is (I’d love it if you got that reference)! You may think you’re fine but do you really have all your shizz together?

Let’s start myth busting and see if meditation is something you’d consider. Could you learn to create some head space? Do you want simple techniques to help calm you when anxiety strikes? Come this way and learn how to solve problems the easy way!

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The Typical Image of Someone Meditating

1. Ok, so maybe you tried it once or twice and it didn’t solve your bitchy boss problem, or *________ (insert problem here). There are have been heaps of studies about meditation solving all sorts of things – mental and physical things. So when life goes pear shaped, it’s easy to pin your hopes on something you’ve heard might solve it all. However, like most things in life, you can’t just try it once and be all ‘winner winner’! When has that worked for you? I bet you didn’t just take one antibiotic dose and lose that throat infection either, did you?

You have to practise, practise, practise. But first explore and find out what works for you. Yep, that sounds like loads of work but you’re likely to find one that suits you pretty quickly. I know within seconds if the voice is right for me; if not, I change it. Look for beginner guided meditations first. I’ve recommended some of my favourites at the end of this post ⬇️.

2. Now then fidget pants, close all the other tabs on your phone – Yep, thought as much. I bet you’re doing way too much. No wonder you can’t concentrate, you need to stop sometimes and chill. If you had to sit in silence, could you? I doubt it, but that’s not the point. The goal for meditation is to help you cope with life!

You don’t need to silence your mind to meditate. You’re not a Buddhist monk! (unless you are, then I wholly apologise for everything I’ve said). This whole malarkey has actually been researched! They found that people when asked to concentrate on something, say a candle, for 5 minutes, couldn’t. Then they were told to not think about that candle and let their mind wander for 5 minutes. Guess what? They all thought about that sweet candle. I bet you’re imagining a candle now! 😂 Let your mind roam free and you’ll calm it. Silencing the mind to mediate is a total myth!

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Meditation is Not About Silencing The Mind

3. No time for it? Well I’m going to blow your mind right now… I watched this awesome Ted Talk and found out that there’s a study published in the International Journal of Neuroscience about this time thing, I wasn’t expecting what the speaker told us. So, our biological age speeds up when stressed and meditating can reduce the rate we age at. e.g. If you start meditating daily on your 30th birthday and had a matching biological and chronological age (Science stuff), something awesome happens – on your 35th birthday you’d have the skin, sight, hearing, memory and sexual responsiveness (yes, I went there) of a 23 year old! Say again???

Crazy – but logically from this research, meditation is the one activity where you get back the time you put in! You can meditate for 1 minute or 10 hours! You can concentrate on that candle for hours or learn a quick breathing meditation to calm your mind in minutes. I use an affirmation such as ‘Everything is going to be okay’ when the anxiety monster bites me. Just as it starts to sink those teeth in, my muttered words start to become reality; I know it’s going to be👌🏻and I can relax. This has stopped me having a panic attack more than once! You can use these quickies anytime, anywhere; on the train, in the office or lying in the dark.

4. Alright, you’re fine are you? Be honest – it’s only you and me! Do you have a busy mind; ever worry over things; lose your rag with your kids or argue with your partner? If you just nodded, raised your hand (it’s ok, no-one’s watching –  unless you’re on that train) or accepted those may be a possibility; you might want to rethink your excuse. It sounds to me like you need some time out, headspace or coping strategies! In a day we have tens of thousands of thoughts, it’s highly unlikely that you really are just fine. Meditation Mindfulness is a great way to take some time to consider what you need and how to get it. I bet after a few weeks meditating, a loved one notices something – an normal argument topic, becomes something you let go of instead! 

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Meditation after Brain Surgery

Meditation in any form, has more restorative effects than sleep. It’s thought to release feel good hormones and free the tension that’s built up over a stressful day. In my case, my pain is often worse than when I gave birth to my 10lb 9oz son naturally (really)! 15 minutes of meditation will reduce that pain to a tight band feeling – I know, right? I even use it after brain surgery to help me cope with the pain and busyness of a hospital ward. Mediation is a very important part of my daily routine; it can reduce my pain and let me write to you!

5. Ok, some meditation is full on hippie (no offence – I love that myself). The four (some say 30+) types of meditation vary in that between and within each category.

  • Concentration meditations are tough – this is where you have one single point of focus, such as that flickering candle and try and clear your mind of everything else.
  • Contemplation meditations are beginner friendly – guided meditations, visualisation and affirmations. Your mind is active and your thoughts roam free.
  • Mantras or Chanting meditations are the typical image of meditation. This involves prayer beads and chanting ‘om Shanti om’ and is typical Buddhist prayer practice.
  • Transcendental meditations are about going beyond thought. They’re usually way out, using vibrations to take the brain from using beta waves to Delta wave (beyond conscious thought). But can be as simple as closing your eyes and focusing on your breathing and being in the present/now.

There are studies that say meditating can heal such and such, but honestly can a medical meditation trial work? The Ted Talk linked above, explains this much better than I can. But as a beginner, if you try sitting cross legged in the lotus position with palms up in ‘om’ pose and start chanting;  you’re setting yourself up to fail. You’ll feel like a drowning peacock with all your beautiful feathers ruined; losing the attention you crave!

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Meditation Myths Busted! Silencing Your Mind is Not Typical Meditation Practice

My point is made now, but these myths are holding people back from using simple tools and techniques to deal with stress, hidden or not, that would ease the impact on both their mental and physical health!  Whatever you felt about meditation before reading this, I hope I’ve made you think or at least chuckle – unless you’re a Buddhist Monk of course.

Meditation can be an amazing tool for calming your mind. So, I’ll just finish by saying this: Anyone aged 3 – 103 can meditate. We all experience stress in this age of fast paced living. You can stay calm along this busy path through life with simple meditation techniques. Don’t be swayed by the myths and don’t add to them! It really is easy to let meditation into your life.

Here are some links to my favourite beginner meditations if you want to give it a go. * These are not affiliate links, they’re just my recommended go to’s.

Guided Body Scan for Beginners By The Honest Guys

Back To Basics Meditation By Jason Stephenson

Easy Beach Visualisation and Breathing Meditation

3 Minute Breathing Exercise

Deepak Chokra 3 Minute Focus Meditation

I use this App which has access to loads of meditations at different levels of ability and the different types of meditation. Insight Timer

Do you have any questions about meditating?

Do you meditate or is it still not for you?

I’d love to hear your thoughts and feelings on this. Please pop any comments or questions below. I’m looking forward to hearing if you’re a lover or a hater! Peace my friends!

Chronic Illness Bloggers

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